Reps. Danny K. Davis, Barbara Lee, and Michael Burgess Introduce Legislation Supporting the Designation of September 2021 as “Sickle Cell Disease Awareness Month”

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June 23, 2021
Statements

Rep. Danny K. Davis (IL-7)

“As Chair of the Congressional Sickle Cell Caucus, I am proud to introduce a Resolution in the House recognizing September as National Sickle Cell Month in a bipartisan effort with Congresswoman Barbara Lee (CA-9) and Congressman Dr. Michael Burgess (TX-26). The end goal is to bring about education and awareness for this genetic disease that disproportionately impacts African Americans and persons of color.  We encourage HHS Secretary Becerra and the Department’s leadership to ensure that Medicaid patients living with Sickle Cell have access to the innovative gene therapies that have the potential to cure this disease”.

 

Rep. Barbara Lee (CA-9)

“The burden of sickle cell trait and sickle cell disease upon African American families across this nation deserves immediate attention from by the Department of Health and Human Services to raise public awareness for screening, disease surveillance, patient counseling, culturally competent clinician training, and family education,” said Congresswoman Barbara Lee. “Our ecosystem must also work to commit to finding a curative treatment by supporting our research enterprise for cutting-edge gene-editing therapies ensuring better patient outcomes and quality of life I’m proud to join Reps. Danny K. Davis and Michael Burgess to reestablish our effort to recognize September as National Sickle Cell Disease Month and encourage a conversation about how we can raise awareness among those living with Sick Cell Trait.”

 

Rep. Dr. Michael Burgess, M.D. (TX-26)

“Sickle cell patients know a unique kind of pain. I remember treating patients in the emergency room when I was a resident at Parkland Hospital in Dallas. For decades, the treatment options for these patients remained the same and they remained inadequate. Raising awareness and increasing research for this disease remains one of my top legislative priorities. Recognizing September as National Sickle Cell Disease Month is a small step towards bring more awareness to our communities.”